Holiday tips...
The holidays can be stressful for anyone, but they are particularly challenging for caregivers. Here are some tips to help you make it...
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Has your child had a tonsillectomy or adnoidectomy because of his/her sleep challenges?
ANSWER: 22% of DMDDers with sleep issues have had a tonsillectomy and/or adenoidectomy. Of those 15 who had the procedure, only 1 said it...
Has your DMDDer had a sleep study done?
ANSWER: 19% of our kiddos with sleep issues have had a sleep study done. Another 11% are planning to do one. Of those that had the sleep...
What strategies do you use to help your DMDDer get a good night's sleep?
ANSWER: 76% focus on a regular bedtime 65% use melatonin or other non-Rx supplement for sleep 39% give our kiddos a bath, warm milk, a...
Does your DMDDer have trouble sleeping?
ANSWER: 96% of our DMDD kiddos have trouble sleeping. 😥 85% have trouble falling asleep 69% have trouble staying asleep 43% have night...
Which resources did you find most helpful when you first received the DMDD diagnosis?
ANSWER: 1. The Explosive Child, by Dr. Ross Greene (book) 2. Dr. Fisher videos (click here for the link: https://www.youtube.com/playlist...
When your child was first diagnosed, did the doctor suggest any educational or support resources?
ANSWER: Sadly, 87% of us received NO educational or support group recommendations at diagnosis (e.g. books, videos, websites, support...
The most important thing I've learned
When I look back now at what I wish I'd known then, I can hear the words so clearly: "He can't help it. He has a mental illness." It took...
Have you tried Dr. Matthews' Protocol?
ANSWER: Almost a third of us have tried it, but many are still too early in the process to say whether it's been successful. 9% Have...
Have you heard of Dr. Matthews' Protocol?
ANSWER: Most of us have heard something about it (66%), but many (34%) have not. (Source: Facebook Survey to DMDD-related groups, June...
And so it begins...
I've been thinking about doing this for a long time - creating a website, a discussion forum, a blog. The idea swirled in my head for...
You Are Not Alone
When our son was diagnosed in 2012 at age 9, DMDD was a new disorder in the world of psychiatry and no one - not even the psychiatrists...
What is your relationship to your DMDDer?
ANSWER: Not surprising, most of us are biological moms (73%). What was surprising, is that 16% of us are adoptive parents. This is...
What state does your DMDDer live in?
ANSWER: We are everywhere! Of the 95 responses, we represented 35 states and Canada! (Source: Facebook Survey, June 2019. n=95)
Does your DMDDer have additional diagnoses?
ANSWER: 67% said yes. Of those with additional diagnoses, the most common were ADHD/ADD (70%), Anxiety (61%), and Depression (31%)....
How old is your DMDD child now?
ANSWER: 82% of our kids are under 14 years old. The average age is 11. (Source: Facebook Survey, June 2019. n=95)
How long ago was your child diagnosed with DMDD?
Answer: 68% were diagnosed in the past two years. 25% were diagnosed in the last six months. (Source: Facebook Survey, June 2019. n=95)
At what age was your DMDDer diagnosed? (Facebook poll, June 2019, n=95)
Answer: 86% of our kiddos were diagnosed before age 12. The average age at diagnosis was 9.