ANSWER: 19% of our kiddos with sleep issues have had a sleep study done. Another 11% are planning to do one. Of those that had the sleep study done: 57% found our kiddos has sleep apnea 36% found our kiddos had sleep hypopnea (Source: Facebook Survey to DMDD-related groups, July 2019. n=72) Those who had sleep study done was a small base: n=14)
ANSWER: 96% of our DMDD kiddos have trouble sleeping. 😥 85% have trouble falling asleep 69% have trouble staying asleep 43% have night terrors/nightmares or other disruptions 22% have additional issues like bed wetting, waking up early, teeth grinding or restlessness/kicking. (Source: Facebook Survey to DMDD-related groups, July 2019. n=72.)
ANSWER: Sadly, 87% of us received NO educational or support group recommendations at diagnosis (e.g. books, videos, websites, support groups). (Source: Facebook Survey to DMDD-related groups, July 2019. n=32)
ANSWER: Most of us have heard something about it (66%), but many (34%) have not. (Source: Facebook Survey to DMDD-related groups, June 2019. n=100)
ANSWER: Almost a third of us have tried it, but many are still too early in the process to say whether it’s been successful. 9% Have tried it, and are happy with the results 7% Have tried it, but are having some issues 16% Have just started, so aren’t sure of the outcome yet 7% Haven’t tried it, but are planning to try it in the future 22% Haven’t tried it, but are open to it if things don’t improve 7% Haven’t tried it, and don’t plan to try it 32% Haven’t tried it, but would like to know more (Source: Facebook Survey to DMDD-related groups, June 2019. n=100) (This survey is still open! If we get more responses, we will update this answer. Click here to participate: https://www.surveymonkey.com/r/YFKTY6H)
